The 2014 “GET FIT EXPO” is TOMORROW…and precious Raquel is our inspiration to raise money for RESEARCH to find a CURE! LET’S pump up the community to get fit while raising money for “The Jack and J.T. Snow Scientific Research Foundation” with Gold’s Gym
St. Peters, MO – The entertainment and activities are being lined-up for the upcoming 3rd Annual “GET FIT EXPO!” to benefit The Jack and J.T. Snow Scientific Research Foundation (The Snow Foundation) on Saturday, May 17th, 2014 from 12:00 pm until 4:00 pm at Gold’s Gym, 5230 Hwy 94 in St. Peters, MO. This Get Fit Expo – hosted and produced by the Executive Gold’s Gym team and Kelley Lamm, encourages everyone to get pumped to get fit, Saturday, May 17, 2013 at Gold’s Gym while raising awareness and funds for the The Snow Foundation.
Raquel’s Story
by Stephanie Snow Gebel
In October of 2010, my five-year old daughter, Raquel, was diagnosed with Wolfram syndrome, a rare disease which initially presents as Type I Diabetes and ultimately progresses to vision, hearing and brain loss. The onset is typically at 4-5 years old with a 5-8 year span before hearing, vision and brain degeneration begins. Tragically, sixty percent of patients affected by Wolfram syndrome die by their 30th birthday.
As a mother, my heart aches and it’s hard to breathe when I think of watching my child deteriorate before my eyes. But, I believe God knows that I can make a difference, first for this outstanding team of Washington University School of Medicine researchers, and ultimately for children everywhere affected by this disease.
Please help me raise the money needed to conduct these Wolfram Clinics. The team at Wash U, led by Dr. Fumihiko Urano, is very close to identifying potential treatment options. I am confident that with the money raised, this team of researchers can find a cure to stop the neurological degeneration of Wolfram syndrome, as well as those affected by other neurological disorders. They are so close, but it all comes down to funding. Please help contribute to our foundation and help save my daughter and others like her.
